Patient Engagement Coordinator/

Administrative Assistant

Full-Time Role

Soft Bones, Inc., The US Hypophosphatasia Foundation, seeks a dynamic Patient Engagement Coordinator and Administrative Assistant to continue our mission to support patients and families living with hypophosphatasia and to positively impact their health outcomes by connecting them with appropriate resources. The right person will be an independent, self-starter, and able to connect with patients while supporting the team with project management and some administrative needs of our organization. High potential for growth within the organization for the right candidate. While this is a hybrid position, a Morris/Essex/Somerset/Sussex County, NJ resident is required. Some travel to host patient meetings or to support Region Leads may be expected.

Job responsibilities include:

Patient Engagement Coordinator

Triages patient needs from across the country and connects patients with available resources
Conducts proactive outreach to the patient community and builds relationships to strengthen the value of organization among constituents
Supports Region Lead, Teen Advisory Council, Patient of the Month, and other programs
Assembles and sends new patient packets to families/caregivers
Attends weekly Level 10 team meetings
Manages patient database with regular data entry on correspondence, interactions, and progress toward disease management goals
Maintains follow-up with patients and caregivers on health outcomes and resolution of their challenges in accessing care
Flags gaps in current support to Soft Bones leadership; suggests additional resources and programs as appropriate
Assesses the needs of patients and families to determine the best means to impact their health outcomes in a positive way
Engage in social media to identify opportunities for engagement and resource support
Contribute to newsletter with relevant stories

Administrative Responsibilities

Check PO Box for mail
Deposit checks at the bank and enter into database
Send donation acknowledgment letters to donors
Assemble and mail patient packets and other mailings
Track team workstreams using Monday.com for project management
Support exhibit hall set up for medical meetings (assist with furniture rental, AV support, etc.)
Coordinate patient meeting planning and logistic support (secure restaurant, provide credit card, AV support, etc.)
Oversee production work for printed assets for meetings, fundraisers, or other events
Support coordination and set up of webinars/online meetings
Manage CME credits for physicians who participate in ECHO educational webinars
Maintain inventory and research potential promotional swag costs/items
Support with periodic website updates
Provide organization support with online filing system
Secure legal forms, waivers, and releases

Job Education / Requirements include:

Bachelor’s degree with at least two years experience or related experience in health education/promotion, community health, social work, education or healthcare office setting
Strong organizational and planning skills
Experience in conveying health-related information via phone, email or chat is preferred
Excellent written and verbal communication skills
Superior time management skills and ability to multi-task, prioritize work
Empathetic and able to communicate effectively with a wide variety of people
Self-motivated, diplomatic, tactful and a team player
Ability to keep sensitive information confidential
Proficient in MS Office, Google, Box, Canva, Zoom; Donor management software experience is helpful
Bilingual candidates (fluent in English/Spanish or other) are highly valued

Full Time – 40 hours/week

Soft Bones, Inc.

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